Alzheimer's Disease Working Group
Active dates:May 2009 -2011
Function: The Alzheimer's disease working group must examine the array of needs of individuals diagnosed with Alzheimer's disease, services available to meet these needs, and the capacity of the state and current providers to meet these and future needs. The working group shall consider and make recommendations and findings on the following issues:
(1) trends in the state's Alzheimer's population and service needs including, but not limited to:
(i) the state's role in long-term care, family caregiver support, and assistance to persons with early-stage and early-onset of Alzheimer's disease;
(ii) state policy regarding persons with Alzheimer's disease and dementia; and
(iii) establishment of a surveillance system to provide proper estimates of the number of persons in the state with Alzheimer's disease, and the changing population with dementia;
(2) existing resources, services, and capacity including, but not limited to:
(i) type, cost, and availability of dementia services;
(ii) dementia-specific training requirements for long-term care staff;
(iii) quality care measures for residential care facilities;
(iv) availability of home and community-based resources for persons with Alzheimer's disease, including respite care;
(v) number and availability of long-term care dementia units;
(vi) adequacy and appropriateness of geriatric psychiatric units for persons with behavior disorders associated with Alzheimer's and related dementia;
(vii) assisted living residential options for persons with dementia; and
(viii) state support of Alzheimer's research through Minnesota universities and other resources; and
(3) needed policies or responses including, but not limited to, the provision of coordinated services and supports to persons and families living with Alzheimer's and related disorders, the capacity to meet these needs, and strategies to address identified gaps in services.
The Board on Aging must submit a report providing the findings and recommendations of the working group, including any draft legislation necessary to implement the recommendations, to the governor and chairs and ranking minority members of the legislative committees with jurisdiction over health care no later than January 15, 2011.
Chapter 159 Minn. Laws stipulated the Board on Aging was to select a designee to convene the first meeting of the working group no later than September 1, 2009.
The working group held its first meeting on August 27, 2009.
Working Group Members as of early 2011:
Terry Barclay, PhD, Neuropsychologist, Health Partners
Mary Birchard, Executive Director, Alzheimer's Association MN-ND
Jayne Clairmont, Member, MN Board on Aging
Patricia Cullen, President and CEO, Care Providers of MN
Michael Demmer, President and CEO, Prairie Senior Cottages
Charles Denny, Caregiver, Community Member
Michael Donohue, Retired, Community Member
Jayne Hager Dee, Vice Chair, MN Board on Aging
Kathleen Harrington, Chair, MN Board on Aging
Robert Held, Director, Nursing Facility Rates and Policy Division, MN Department of Human Services
Deb Holtz, Ombudsman for Long Term Care, MN Board on Aging
Neil Johnson, Executive Director, MN Homecare Association
William Keigan, Retired, Community Member
Mary Manning, Director, Health Promotion and Chronic Disease, MN Department of Health
Anne Murray, MD, Geriatrician, Hennepin County Medical Center
Ronald Petersen, MD, PhD, Neurologist and Director, Abigail van Buren Alzheimer's Disease Research Center, Mayo Clinic
Catherine Sampson, Director, Arrowhead Area Agency on Aging
George Schoephoerster, MD, Family Physician, Geriatric Services of MN
Carol Shapiro, Caregiver, Community Member
John Thomas, MD, Medical Director, Red River Valley Hospice
Chair: Charles M .Denny, Jr., a family caregiver and retired business leader in the state.
Entries for this agency in the Annual Compilation and Statistical Report of Multi-Member Agencies Report:
2011, 2010, 2009.
Note: This report provides membership details as well as meeting information and a summary of the group's activities.
Note: The Legislative Reference Library may have additional reports on or by this group available through our catalog.
News clippings and documents. Agencies Notebook Collection, 2009.
Record last updated:
All information on this group from the Library’s collection of agency notebooks has been digitized. These
materials are incorporated into the “documents/articles” section of the record. Please contact a librarian with any questions. The Minnesota Agencies database is a work in progress.